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neandrothal

1 month ago

in Wolfram Alpha destroys 23andMe’s Strategic Advantage? Huh? on Think Gene
They'll need to do better than this: http://www96.wolframalpha.com/input/?i=rs429358

Wolfram|Alpha also only has access to publicly available data. Access to all of the *abstracts* in PubMed isn't going to obviate the need for human curators any time soon.

4 months ago

in Legal Details of a USA Certificate of Confidentiality in Medical Research on Think Gene
The Certificate of Confidentiality prevents *involuntary* disclosure under compulsion from the government. It does *nothing* at all to prevent the recipients of the Certificate from *voluntarily* selling data to evil pharmaceutical companies. Tuskegee was "medical research" yet they weren't compelled by the government to release data to anybody.
2 replies
Steven Murphy MD @ Anonoymous......
Funny, last time I checked, that's what people are scared of "Involuntary Disclosure" through legal stuff.....As for a NON-FOR-PROFIT, releasing data FOR PROFIT MOTIVE is not in the spirit of that company......However, DTC FOR PROFIT companies will release and have Neither HIPAA or Certificate protections......

Thus, I say....stay away from any company who can SELL your genome without your approval.....I.E. 23andMe, Decode, Navigenics, DNADynasty, et.al.

-Steve
www.thegenesherpa.blogspot.com
Andrew Yates's picture
Andrew Yates This is congruent with the legal precedent that rights are "property". The alternative would be a reduction of personal freedoms.

7 months ago

in 23andMe on Think Gene
That's what I thought about Coriell too, but I found this on their website. (http://www.coriell.org/index.php/content/view/1...)

"Since we are not physicians, we will not offer medical advice. We will educate you about possible next steps. An example of this would be to discuss with your doctor about modifying your diet or exercise routine to try to reduce your risk of actually developing the disease. Please consult with your physician for advice on what you can do to lower your disease risk."

So what exactly *is* "medical advice"?
1 reply
Andrew Yates's picture
Andrew Yates I can't view this because it is claiming that I need a log in. I will find out about this.

10 months ago

in Why DTC Genomics is Dead: The Coriell PMC on Think Gene
Actually, GINA says that insurers/employers cannot request or require that you take a genetic test. So discrimination based on *not* having a test is still illegal.
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