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Coriell Institute
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10 months ago
in Common Responses to Why DTC Genomics is Dead: Coriell PMC on Think Gene
Just to clarify… KyleS is correct: Coriell is not a government institution nor is the Coriell Personalized Medicine Collaborative (CPMC) a government-funded study.
The Coriell Institute for Medical Research is a 501(c)(3) non-profit, basic biomedical research institution that is supported by philanthropic donations and by NIH-funded grants. The five-million dollars we have raised to date for the CPMC has come solely from private foundations and individual donors.
Additionally, the CPMC is not simply a “free medical test,” rather it is a research study that aims to determine the utility of using genome information in health care. Evidence-based studies, like the CPMC, are needed before we will fully understand the impact genomic information may have on an individual’s health care.
A few other details:
Our current focus is on individuals in the Delaware Valley, primarily to ensure our study is performed in a medical context, meaning we reach out to both medical professionals and their patients to educate both parties on genome-informed medicine.
The CPMC web portal will be live toward the end of the year with genetic results. Participants will only receive information about potentially medically actionable genetic variants in an attempt to prevent undue anxiety associated with genetic prognosis. Participants will also have access to genetic counselors (at no cost) to discuss their CPMC results.
The Coriell Institute for Medical Research is a 501(c)(3) non-profit, basic biomedical research institution that is supported by philanthropic donations and by NIH-funded grants. The five-million dollars we have raised to date for the CPMC has come solely from private foundations and individual donors.
Additionally, the CPMC is not simply a “free medical test,” rather it is a research study that aims to determine the utility of using genome information in health care. Evidence-based studies, like the CPMC, are needed before we will fully understand the impact genomic information may have on an individual’s health care.
A few other details:
Our current focus is on individuals in the Delaware Valley, primarily to ensure our study is performed in a medical context, meaning we reach out to both medical professionals and their patients to educate both parties on genome-informed medicine.
The CPMC web portal will be live toward the end of the year with genetic results. Participants will only receive information about potentially medically actionable genetic variants in an attempt to prevent undue anxiety associated with genetic prognosis. Participants will also have access to genetic counselors (at no cost) to discuss their CPMC results.
10 months ago
in Why DTC Genomics is Dead: The Coriell PMC on Think Gene
Just to clarify on a few points… Coriell is not a government institution nor is the Coriell Personalized Medicine Collaborative (CPMC) a government-funded study.
The Coriell Institute for Medical Research is a 501(c)(3) non-profit, basic biomedical research institution that is supported by philanthropic donations and by NIH-funded grants. The five-million dollars we have raised to date for the CPMC has come solely from private foundations and individual donors.
Additionally, the CPMC is not simply a “free medical test,” rather it is a research study that aims to determine the utility of using genome information in health care. Evidence-based studies, like the CPMC, are needed before we will fully understand the impact genomic information may have on an individual’s health care.
Our current focus is on individuals in the Delaware Valley, primarily to ensure our study is performed in a medical context, meaning we reach out to both medical professionals and their patients to educate both parties on genome-informed medicine. The CPMC web portal will be live toward the end of the year with genetic results.
The Coriell Institute for Medical Research is a 501(c)(3) non-profit, basic biomedical research institution that is supported by philanthropic donations and by NIH-funded grants. The five-million dollars we have raised to date for the CPMC has come solely from private foundations and individual donors.
Additionally, the CPMC is not simply a “free medical test,” rather it is a research study that aims to determine the utility of using genome information in health care. Evidence-based studies, like the CPMC, are needed before we will fully understand the impact genomic information may have on an individual’s health care.
Our current focus is on individuals in the Delaware Valley, primarily to ensure our study is performed in a medical context, meaning we reach out to both medical professionals and their patients to educate both parties on genome-informed medicine. The CPMC web portal will be live toward the end of the year with genetic results.
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