Re: Neutropenia Symptoms - Medical Symptoms Pages

oldrose1974 — Thu, 20 Aug 2009 04:54:45 -0000

Hi Kimcalli,
Natural treatments don't change the neutropenia level, it
just supports your
general health so that you feel better in that area but yes your right even
that had it's limitations.
I have done natural treatments like deep tissue massage, bowen, chinese
herbs, accupunture
etc etc, yes spent $1000's but never cured, it just brought me more time
till I knew i'd have no
choice than to go on the GCSF but yes I am having such side effects I wonder
if thats even
worth it anyway? I spend a day in bed after injections and have bone pains
for 2 days, mainly
ribcage. I hate it too as I think my husband thought I would be 'better' on
the needles, hmmmm
same as you I feel for my husband as it is very hard to deal with and I told
him if he can't handle
'it' I understand as honestly it's exhausting enough for me to handle it
all!!! I think sometimes
men just don't 'get' how gentle, loving, fragile creatures we are!!!
If your husband is good in health then you will never get him to understand
you unless he
goes thru some health issue of his own, so that he will understand you.
For you to know, would you 'tell' a sick child with a severe health issue to
'get over it' or
'stop being lazy'? You wouldn't dare. I read a quote in a Get well book that
said
Now is the time to listen to your
body-- like an understanding parent who sets a slower pace to accommodate a
child's shorter stride. HOW POWERFUL THAT IS, imagine you see
a father in a park dragging his tiny child who can barely walk, would you
think
he is right? He is training that kid to WALK! Or would you think, what a
jerk!
He should 'go at the pace of the little one'!!! Yes those of us with health
problems cannot do what we cannot do!!! I don't think your lazy, I think
your
tiredness is exhausting, I KNOW, I have the same. I wake up TIRED, I have no
energy, I am a mother of two, I am busy with life yet struggle EVERY DAY and
frustration kicks inabout 3pm and I want to go to bed by 6pm but can't cause
of
family so just fall in bed exhausted every day and if anyone says " oh just
think
posotive and you'll feel better" I want to punch them in the face then tell
em to
walk in my shoes for a few days. Health is a very personal thing and I find
the Healthy people have the least understanding for me, I never wanted my
health to define me but it HAS anyway, I can't hide it any more as I feel so
unwell just taking care of my family I am over my limit!!! I wish you much
peace and rest and health and any questions you have I don't mind you can
ask,
I may not always know the answer but can be a good listener if thats what
you need.
Don't be too hard on your self.
From
Rose
Ps If I ever find an injection that gives us energy I'll send you some!!!
Nothing has ever given me energy. Sorry.
My direct email is cmmackie@bigpond.com

Re: Neutropenia Symptoms - Medical Symptoms Pages

oldrose1974 — Tue, 18 Aug 2009 09:01:05 -0000

Hi Kim,
My name is Rose and I have had neutropenia most of
my life. I wonder sometimes, have I ever been well? I really
struggle a bit with it now. ( 34yrs/female) My specialist wanted me on the G.C.S.F injections over 10 yrs ago!! I went on to try natural treatments and although having unwell days as usual I had limited infections etc. NOW after
all these years I am at such a low point ( 0.4 ) levels between 1.8--7.5 are normal. I am soooo tired ALL the time, get sick of hearing myself SAY IT! Tiredness isn't said
to be a symptom of neutropenia....hmmm well then how come when a person 'gives' bone marrow donation they are
told they may feel tired for up too 3 weeks after???? HMMM We with neutropenia LIVE with very little immune system and my experience is that I don't have to do much to be 'wiped out' and running a house with 2 kids and all the rest leaves me pretty shattered. I was always so 'go
go go' even though sick, now I am older i can be bothered
running round only to end up in bed sick. I am not the sort that 'lets' my health 'define' me but of late it has anyway..
I am on G.C.S.F injections now and yes, hmmm to feel ill-
side effects- to 'have' an immune system seems cruel!! I feel like I got on a roller coaster when started them ( 2 months ago) I don't know if I will stay on them, I am doing
a trial, I say. Hope all those out there with neutropenia
have loving understanding family members as this helps
no end. Support those and love them is my advise as it
can be very exhausting 'trying' to remain well with this condition. Love to all. Rest and use Hand Sanitizer!!!!! It
does work. XXX

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Re: Neutropenia Symptoms - Medical Symptoms Pages

Re: Neutropenia Symptoms - Medical Symptoms Pages