Disqus - Latest Comments for ePatientDave

Re: 5 Free Ways to Never Miss a Twitter @Reply

ePatientDave — Tue, 03 Aug 2010 03:31:54 -0000

Que?? What happened to Tweetbeep??

Love these others tho - this one's a keeper.

Re: Health Reform Documents

ePatientDave — Sat, 20 Mar 2010 08:04:46 -0000

I should have known - last night I tweeted "Now that it looks like a bill will pass, who can link me to a concise summary of what's in it?" And @Shellsuga steered me here. You rock.

I just added Odiogo to my personal blog and gave you props.

Re: Now Is the Time for Fast Followers

ePatientDave — Fri, 05 Mar 2010 21:05:21 -0000

Ah so. I see. Some people think Google is waiting for Microsoft HealthVault
to spend all the money, then Google can waltz in. But it doesn't look to me
like HealthVault is failing in any way!

I verrrrrry distantly recall that there was an earlier company in online
books. Remind me.

Re: Now Is the Time for Fast Followers

ePatientDave — Fri, 05 Mar 2010 19:05:45 -0000

Hee hee, what a surprise, Meredith counselling compassion for the soft-spoken. :-)

Point taken, of course. We encourage, not shame. We try to be, well, appealing.

Re: Now Is the Time for Fast Followers

ePatientDave — Fri, 05 Mar 2010 12:39:59 -0000

That is GREAT!! Brilliant! I'll send people here.

Did you mean the headline to say "fast followers"? From the video it sounds like "first followers" makes more sense.

Great work, Kevin! And thanks, Susannah. As always, when something catches your eye, it's news.

Re: If I Were a Realtor

ePatientDave — Thu, 24 Dec 2009 11:18:05 -0000

Dude, this is WAY too good a post to get washed away in Christmas downtime. You gotta blip it again in a few days.

This post flips our usual business perspective and lets us see (from the customer side) how many ways social media could engage us, and isn't being used. Missed opportunity!

Re: Jay Parkinson + MD + MPH = a doctor in NYC (“Reforming a system that’s badly broken”: an interview with Jay Parkinson, MD, MPH)

ePatientDave — Wed, 23 Dec 2009 14:34:12 -0000

btw, your post didn't do justice to the interview - there's a heck of a lot of good content on those ~15 minutes about how healthcare can change by getting modern. We didn't ask for your time just because you're a hot photographer y'know. :-)

Re: Jay Parkinson + MD + MPH = a doctor in NYC (“Reforming a system that’s badly broken”: an interview with Jay Parkinson, MD, MPH)

ePatientDave — Wed, 23 Dec 2009 14:28:48 -0000

Meeting you back in January was one of the highllights of my 2009. Oh, and the stuff we've done since then, like this.

Let's hope 2010 is the year more of the world starts to get it. I'm pretty sure MOST of the push will come from consumer/patients - methinks great things will accrue to providers like you who create new-wave solutions, to which consumers will flock when they realize they don't have to be so mistreated. (Same for physicians - there's a bit of a dumbfest going on right now on KevinMD's blog about the dark side of "allowing" patients to email!)

Re: jay parkinson + md + mph = doctor in brooklyn - Yesteryear's healthcare pilot projects are inadequate for today's problems.

ePatientDave — Mon, 14 Dec 2009 00:38:21 -0000

I think you've got a great point about the decades to produce results. And I'm a total believer in agile development.

But let's explore. Who's going to mediate the agile process? Are we going to have stand-up meetings every Monday morning, or some equivalent? Who's going to declare when things are or aren't working?

Perhaps we go with six month cycles instead of two week. And yeah, it would sure depend on having frequent data - maybe the first cycle would be to put the infrastructure in place. (Hint: that should be done by people under 30, who don't know it's not possible so they'd just do it.) (Maybe we ask Jonathan Bush to share his data, as a proxy for complete data?)

I'm interested in this idea - just wondering how we flesh it out.

Re: jay parkinson + md + mph = doctor in brooklyn - ASPEN DESIGN SUMMIT 2009

ePatientDave — Wed, 11 Nov 2009 16:17:44 -0000

Dude, you are the morning DJ on radio station WTMF - "Way Too Much Fun"!

Re: Ugly Politics & End-Of-Life Care

ePatientDave — Mon, 17 Aug 2009 16:23:04 -0000

Very good, Rob. I couldn't agree more.

Last fall, IBM's Paul Grundy MD (head of the Patient-Centered Primary Care Collaborative) told how his father's end of life was managed, reprehensibly. He told about it on a comment on the e-patient blog:

"He had services worth hundreds of thousands of dollars given to him he did not want — even had a directive against. I showed up in his hospital room after he had a fall with only 8% cardiac function with end stage congestive heart failure. They had place a pacemaker in him and his first question to me was “how did this thing get in”? and how do I turn it off? Will this go off and not let me die make me suffer more? He had a directive not do such a thing but no body contacted his primary care doctor – turns out this happen well over 50% of the time in the USA. Nobody bother to ask his wife sitting in the waiting room – nobody cared."

Shame on the people who do this. Shame on the money people who encourage it.

And, to flip it around, let's praise the people who ARE paying attention to grace and decency at end of life. Thanks for this post, Rob.

Re: If Twitter Consisted of 100 People [Gorgeous Graphics]

ePatientDave — Mon, 17 Aug 2009 08:52:36 -0000

The 100-people graphic is illuminating but it has some major (imo) glitches:

1) it explicitly shows that there's no overlap between groups when in reality the "5 loud mouths" have very large overlap with the 5 with 100+ followers;

2) it explicitly shows a mix of genders for each color group, when I imagine no such mix was intended (tho I might be wrong).

Re: jay parkinson + md + mph = doctor in brooklyn - msg: zachklein’s problem with healthcare: Two...

ePatientDave — Wed, 12 Aug 2009 18:53:57 -0000

Yeah, I'm glad to be alive, too. Seriously, this is no joking matter: I have a bunch of relatives who have one less funeral in their past, and I have daughter whose dad walked her down the aisle and a mom who had all 6 offspring at her 80th birthday party a few weeks ago. This is what we're up to: making more Yes events and fewer "I wish he could have been here."

Seriously.

Meanwhile: the homeliness (I agree!) of sites like ACOR.org is due in large part to resources. Money. Fund-o-rama.

Lately I have a bee in my bonnet: "1% for the patients." Whatever else happens will all the massive gobs of money being flung around in DC, if we just take 1% and set it aside for patient communities, it'll make a massive difference.

Re: jay parkinson + md + mph = doctor in brooklyn - Obama Health Reform and Wait Times Visualization...

ePatientDave — Mon, 10 Aug 2009 13:02:06 -0000

And, btw, I greatly object to "10000pennies" equating universal coverage with "reform." That's a nasty conflation that can have no honest intent, imo.

Re: jay parkinson + md + mph = doctor in brooklyn - Obama Health Reform and Wait Times Visualization...

ePatientDave — Mon, 10 Aug 2009 12:58:05 -0000

Two honest questions:

1. How many people in Georgia have no insurance?

2. What's up with assessing the interim state of a system before it reaches its new equilibrium? Everyone knows there aren't enough primaries, right, so this isn't a surprise?

To me the increased wait times are nothing but a clear (if uncomfortable) indication of what business people would call "latent demand" that in the past had no ACCESS to the service. Make the service available without changing capacity, and surprise, queue length grows, until supply responds eventually. For that to be an indictment of *offering* the service seems somehow off-base.

But I know you're a smart guy and I usually agree with your thinking, so let's discuss. Am I missing something, or is my view accurate too?

Re: jay parkinson + md + mph = doctor in brooklyn - The most dynamic, most talked about companies on...

ePatientDave — Wed, 22 Jul 2009 00:20:04 -0000

Yeah, perfect - something like this is my fav way to introduce high-tech newbies to the world of healthcare. "Dude, this is VAST - imagine THIRTY Microsofts AND thirty Googles."

Better yet, re the odds of change: consider how much resistance you'd get if you tried to eliminate 10 companies the size of Microsoft and 10 Googles. (That's what we're talking about if we succeed in lowering America's healthcare costs by 1/3, so our per capita costs match the rest of the world.)

Re: A quick overview of why healthcare is so expensive

ePatientDave — Sat, 06 Jun 2009 15:00:33 -0000

We are so aligned on so many things.... you said in a few words what I said in many. :) (And Gilles nailed the money quote in a comment.) http://is.gd/QBUv

Rock on, Doc.

Re: Our Hello Health: A site for Health Professionals - Some people who advocate for healthcare reform are...

ePatientDave — Wed, 27 May 2009 00:23:30 -0000

Yup, that's what I said.

But but but. Why is this on a page labeled "for professionals"? Is this something patients aren't supposed to know about?

Heh heh heh...

Re: When Twitter Goes Down

ePatientDave — Sat, 09 May 2009 08:37:37 -0000

As a desperation move, doesn't HootSuite's delayed send feature let you do this?

I use TweetDeck for most everything, but I find the scheduled send feature useful for flashes of insipitation at 2 a.m. that need to be seen by my dayjob tweeps.

Re: Is Health IT Being Rushed, Leading To Patient Errors?

ePatientDave — Sun, 03 May 2009 13:00:48 -0000

Val, you rock! Thank you SO MUCH for telling people to read my original post! 99% of what's been written about the story has been second- or third-hand. And the hell of it is, dagnabbit, I actually put a fair amount of work into detailing and thinking about the story, so it would be WORTH reading. :)

This stuff can be solved, but it takes WORK. Fortunately the issues are well known in the non-medical IT world; one of the more accurate early write-ups about my post was on the Information Quality Trainwrecks, where they write about all sort of disasters (large and small) that happen when data is used cluelessly.

I do data work in my day job. The first place to start is always "What are you going to DO with the data, once it's in the system?" If you don't start there, there's no way to assess the suitability of whatever methods you choose. And given the vastness of the medical "vocabulary" (90,000+ SNOMED-CT codes, not to mention CPT and everything else), failure to define these so-called "use cases" will surely cause us to simultaneously go crazy AND get nowhere.

Re: Hashtags are dead. Long live real-time search and filtering!

ePatientDave — Fri, 10 Apr 2009 10:14:17 -0000

So, what's the big deal? I didn't use the hash sign for the same reason. We still need to settle on a common string, right?

Like, for HealthCamp Boston we're using #hcbos. Fine with me if ppl use just hcbos. Otoh, the # does clue newcomers to what we crowdsourced as the (hashless) tag. And Tweetdeck will detect and auto-include the hashed tag in a reply.

So yeah, we don't NEED it need it, and my searches don't use it, but I sure do still use it. Am I missing something?

Re: jay parkinson + md + mph = doctor in brooklyn - In the present U.S. political context, a bottom-up...

ePatientDave — Sat, 21 Mar 2009 21:47:27 -0000

Okay, I'll play the fool: can you link me to the context for the quote?

On the surface, the excerpt itself looks like a breath of fresh air. (I'm presuming he's talking about all of us starting what we find valuable, rather than requiring centralized control. Maybe not.)

Also I don't know where you're getting the reference to 1992 technology. Please teach.

And thanks for tweeting.