Disqus - Latest Comments for SimoneIcough

Re: Google hints that sites not using structured markup could see their rankings fall

SimoneIcough — Wed, 16 Sep 2015 09:12:03 -0000

Yes we have already implemented on many websites

Re: The Power Plate

SimoneIcough — Tue, 22 May 2012 06:31:44 -0000

Hi Nancy, yeah my legs have a better shape to them now and I feel fitter, I think the power plate is amazing or people with difficulties on the standard gym equipment :)

Re: The Power Plate

SimoneIcough — Mon, 21 May 2012 04:51:11 -0000

50lbs is a lot of weight, it is great to hear you have lost that much, I am still contiuing with the powerplate and do it twice weekly now, although I do find that twice weekly gives me some pain :(

Re: To Brace Or Not To Brace - this is the question?

SimoneIcough — Fri, 23 Mar 2012 05:58:29 -0000

When you are fitted with your brace you should be given guidance reference to the amount of hours you should wear it - for the Boston brace it is generally 23 hours a day that you should wear it - we have some information on the website (http://www.scoliosisnutty.com) regarding braces and quite a few blog posts about clothing to wear with your brace. I had a right thoracic curve of 76 degrees and I would quite often sleep in a foetus position - however, be conscious of pressure sores when sleeping like this - I use a memory foam leg wedge to prevent this and it also helps to support the spine and lumbar

Re: The Chickens Arrive in Monda!

SimoneIcough — Fri, 23 Mar 2012 05:45:57 -0000

Hi Wendy

Welcome - I've been slacking lately on the blogging front due to moving home but I am now settled in Mijas and have started growing in the garden again - I do not know where you can get silky chickens from in Valencia but I know which hens you are talking about - they are so pretty! I will ask on the forum for you also :) x

Re: Power Plate Part II & III

SimoneIcough — Thu, 22 Mar 2012 18:09:15 -0000

Hi Narey

Have you got a gym near you where you can try the power plate? I would recommend you try if you can, I have another 8 sessions and will keep updating you on my journey x

Re: The Power Plate

SimoneIcough — Thu, 15 Mar 2012 11:12:48 -0000

Hi Darling

Of coruse I remember you, how would I forget when you were one of our bloggers :) x

You are such a darling and were you really that young! WOW. I am so pleased to hear from you and know the career path you have chosen is well suited to you

Do stay in touch with me and take care of yourself

xxxxxxx

Re: Scoliosis and Clothes Shopping

SimoneIcough — Wed, 25 Jan 2012 11:08:18 -0000

Hi Darcomma, I am the moderator :) I don't approve posts until I have read them, due to spam, so they have to be approved by me before they show, it is now live. Thanks for posting here and sorry you got so frustrated there :)

Re: Scoliosis Awareness Bracelet

SimoneIcough — Sun, 28 Aug 2011 06:31:00 -0000

Yes I am still selling the Scoliosis Wristbands, here is a link to them http://www.scoliosisnutty.c...

Re: The Loss Of Life

SimoneIcough — Mon, 30 May 2011 06:01:18 -0000

Hi Tiz, of course I remember you, 16 now eh, big girl now ;)

Thanks for your kind words and compassion, yes the blog has been neglected for some time now, but I can say I don't care that much as I am in too much pain but felt I needed to explain, take care and I will remove you as a writer x

Re: The Loss Of Life

SimoneIcough — Mon, 30 May 2011 05:59:50 -0000

Hi Stacy, I am trying but it it so hard, we never needed anyone but each other and now I feel like I am going to split in half - I hope this pain does lessen as right now I cannot see my life without him in it and I see no point in doing mine! x

Re: My new Boston Brace

SimoneIcough — Mon, 30 May 2011 05:58:14 -0000

Good for you Melsantos, that is a great positive attitude you have there towards your Boston Brace and I am pleased you can be so upbeat, I wish all teenagers could feel the same, you don't have to be alone and on your own just because you are wearing a brace

Re: Scoliosis Association of British Columbia

SimoneIcough — Mon, 30 May 2011 05:54:53 -0000

Hi SS61

I think your daughter should join our Facebook group if she feels up to it as it sounds to me like she needs to talk to someone, we have a professional councillor who would be willing to chat to your daughter and help her through these bad times, the poor love - I would also recommend the book "Deenie by Judy Blume", I read this when I was 12 and going through surgery, the story is about a girl with Scoliosis and how alone she feels, it really helped me. The Facebook group has various members in stages of Scoliosis treatment, either surgery or bracing, the group varies in ages also. We would be more than happy to help and assist your daughter through these tough times, tell her she is not alone and do not hide from the world because she is wearing a brace, she has nothing to be ashamed of

Re: Scoliosis Awareness Bracelet

SimoneIcough — Fri, 13 May 2011 05:38:58 -0000

Hi, not the first no, but the first for the UK, yes. We ran market research to see what was the preferred choice of colour and purple with white came out top :) Thanks for your comments and glad you like it also

Re: Oh my holy ghost.

SimoneIcough — Sat, 08 Jan 2011 06:55:57 -0000

Hola Tiz, don't be silly darling you are always welcome here, life happens when you are doing life! :)

I am glad you had not forgotten us, lots has happened over the past year, we launched our wristbands for support and awareness and that went well, nice to see the community supporting me with that one and we kill two birds because those who wear them are building awareness for us twisties - that we like to see :)

Keep up the good work with the brace, you can do it and hopefully it will help stabilise the curve for you, have a good day when your brace is removed but don't go too mad and damage yourself OK? ;)

Thanks for sharing the blog link, I am happy for you to share, that is what we are about after all, welcome back Tiz and keep us updated, especially when you have that brace removed X

Re: Life after Lyrica & Shennanigans!

SimoneIcough — Tue, 30 Nov 2010 05:12:42 -0000

Hi Kathleen

Yes indeed darling, we will still keep interests in Spain as we have a townhouse on the coast too, which is being rented right now by some friends and as the property markets are as they are we need to hold onto that for as long as possible for retirement! (Retirement plans at 34 eh!)

Of course we can spread the support to North America, how would you like to go about it, we have members on the page from all over America and they use the website, perhaps we could add a section to the website for you focusing on North America, where the healthcare providers are, which hospitals, Drs and so on, could you provide that? I would be happy to incorporate whatever you need for the website and if you want me to send over some wristbands for you to sell/raise awareness there, then by all means we can do so

Simone xxx

Re: Red Weevil Update

SimoneIcough — Tue, 02 Nov 2010 07:53:52 -0000

Hi Karima, the red weevil is becoming a real pain for many gardens, touch wood we have been fine so far and not spotted anything! I would be gutted if we lost our palm and I feel for those who already have :(

Re: Vitamins, Minerals, Muscles & Scoliosis

SimoneIcough — Thu, 28 Oct 2010 04:40:09 -0000

http://www.scoliosisnutty.c...

The above link is to a page on my website which will explain in detail, it is an alternative treatment focusing on muscles

Hope that helps

Simone

Re: Madonna's Daughter & Scoliosis

SimoneIcough — Mon, 13 Sep 2010 10:50:12 -0000

Hi Lucia

I have no idea how you would try and get Madonna involved with Sound for #Scoliosis I would start at her website and see if you can get a reply for her website manager x

Re: Life and Lyrica!

SimoneIcough — Wed, 25 Aug 2010 04:55:10 -0000

Hi Bev, what is causing the nerve pain? What is a donor site? The donor site is the scar located on my left hip where they extracted bone for my surgery which was used to place around the spine to keep the rod in place. It is uncommon for a donor site to be used these days, it was popular in the late 80s and 90s but not today. My nerve pain is as a result of this donor site, there are millions of nerves that encompass the pelvic area, in order for them to get to the bone there, they cut straight across those nerves, severring them in half, there is nothing they can do to repair those nerves as they are too fine so my last surgeon visit basically said "get on with it there is nothing we can do to repair the damage that has been caused". xx

Re: Life and Lyrica!

SimoneIcough — Wed, 25 Aug 2010 04:41:43 -0000

Oh Linda, I know babe I have had those thoughts myself and wished I could take people's pain away but it is not to be eh :)

Thanks for the compliments, make me blush slightly as I do not see myself as that, I see myself as a winger who cries more than the average female hahaha!

Re: Life and Lyrica!

SimoneIcough — Wed, 25 Aug 2010 04:40:46 -0000

Hey Gina, I have noticed that I have gained weight, doesn't seem to be much but still, us girls don't like extra weight do we?! No the muscle spasms are still as vibrant as they always were and I had my first bad hit of them this week, in fact I was about to write a blog about them, I am finding the only position that works this morning is on an office chair forcing my stomach forward. I made the wristband so the UK had an official one but not a ribbon. If you want to create a fun run then I don't mind helping you or adding to any of my networks, websites, blogs :) xxx

Re: "It is too an old persons disease!"

SimoneIcough — Fri, 23 Jul 2010 08:24:06 -0000

Hey hun, the reason I get so much pain from my donor site is because the nerves that encompass the pelvis were cut literally in half, now because these nerves are so small it is impossible for him to open that site up again and try to stitch them together. I was also not hoovered out properly so there are bone fragments floating around that area which daily touch the nerves and cause horrendous pain, the scar swells and looks like it is going to burst (best way to describe it), when it swells I know now I am in for a pain hit. There is nothing they can do, so Lyrica right now seems to be the answer as much as I HATE PILLS. All the best my lovely twisted blogger, make sure you update us and while you are seeing the Dr get answers to everything you can think of ;) I would like to know what Canadian surgeons think to Theraflex and CLEAR Institute's methods of "curing" (and yes I use that term LOOSELY!) Scoliosis

Love ya hun

Re: "It is too an old persons disease!"

SimoneIcough — Thu, 22 Jul 2010 09:16:27 -0000

They wanted me awake, yet when I had my pre check up they said they would be putting me to sleep, as they were going to be injecting my donor site I just freaked out, it is so damn sore anyway and if someone touches it I am reduced to tears and the pain continues for hours after so there was just no way I could face a needle there while awake!!!!!!

We all react different to the SI injection, it has worked for some and not others, I gained weight (1 stone) and never seemed to be able to shift it so I have refused to have this done ever again, but this is just my experience babe, the guy who was an Indian in the hospital and newbie probably said the wrong thing to me at the time and perhaps what he was trying to say to me was lost in translation!

They knocked me out in the end and I had it done :)

I would go for it because if it helps you then this is better than suffering.

I am VERY needle phobic also which does not help :) x

Re: "It is too an old persons disease!"

SimoneIcough — Tue, 20 Jul 2010 09:50:04 -0000

Hey Kathleen, great to hear from you again. Do you know what these injections contain? I had an SI joint injection a few years ago with cortisone and local anaesthetic - you cannot have more than 4 cortisone injections a year so please check this.

The SI injection did nothing for me, I had this in 1998 and it was so horrifying I said I would not go through it again

Are they doing some kind of numbing here? I ask because I was offered numbing treatment for my nerve pain from the donor site a few years ago but the result could mean I would need a bag for the rest of my life as I would not be able to tell when I needed the toilet - I refused as I do not want a bag, no matter how much the pain hurts :)

Do let us know how you get on and I wish some relief for you.......